By Lorna Onabanjo
Very exciting time of the year, with Christmas being around the corner;Let’s kick it off by celebrating ‘Jeans for Genes’ Big Charity Christmas
Party Fundraiser. Where all are welcome to bring joy, goodwill and awareness of what work the charity does.
JOSHS STORY
When Josh was two weeks old, his parents were devastated to learn that his retinas were completely detached and that he was blind. Then, after more tests were undertaken by doctors, Josh was diagnosed with Norrie disease, a genetic disorder affecting boys that causes not only sight loss but also deafness and developmental delay.
Josh deals so courageously with his condition. He has been learning braille at school and enjoys playing with his friends. He has been losing his hearing since the age of five and his parents are in the process of investigating the medical treatments available to prevent Josh from going completely deaf.
The money raised on Jeans for Genes Day will provide funding to set up the first UK charity for families affected by Norrie disease. It will provide a support network for those affected and will work to improve the understanding and treatment of Norrie disease among medical professionals in the UK.
Save a place in your diary for Tuesday 29th November 7pm – Late.
It’s a great opportunity to unite and socialise; Red carpet with champagne reception. Relaxing in the most beautiful surroundings of ‘The JuJu, Lounge and Bar. Enjoying various entertainment for all … including Top Dj’s, Comedy, Music artists,Dancers and so much more, with a top celebrity attendance.
Can’t make the date L J Don’t threat, click below to make donations and read up on all the great work, that these guys do for our community and loved ones; All year round à http://www.jeansforgenesday.org/ [2]
We Salute you!
For guest list and table bookings please contact [email protected] or
call 0207 351 5998
